links
Rainbow
Local organisation in Devon for the support of people with
M.E.and their carers - set up by Rose
http://www.rainbow-me.org.uk/
Action for M.E.
National M.E. organisation to which Rainbow is affiliated.
Provides information about M.E., people's experiences, publications,
research and offers services and support.
http://www.afme.org.uk/
The ME Association
A National organisation informing and supporting those
affected by ME/CFS/PVFS
http://www.meassociation.org.uk/
Merge - Research into M.E.
MERGE is a national UK charity funding biomedical research
into Myalgic Encephalomyelitis (also known as ME/CFS) and related illnesses.
http://www.meresearch.org.uk/
CFS Research Foundation.
The CFS Research Foundation encourages basic research into
the body mechanisms that lead to and continue the illness.
www.cfsresearchfoundation.org.uk/
The Complementary Healing Association.
The Complementary Healing Association, CHA, is a charity which is now based in Dawlish, Devon.
The charity (which now incorporates the Aromatherapy Health and Beauty Association) was founded by JoAnn Bailey,
with the intention of bringing all Complementary Healing under one umbrella.
www.thecha.co.uk/
CFIDS
An American website where you can find detailed information
about CFIDS (Chronic fatigue and immune dysfunction syndrome, also known as
chronic fatigue syndrome and myalgic encephalomyelitis - ME) its symptoms,
diagnosis, treatment, important research findings and how it affects the lives
of those who live with it everyday.
http://www.cfids.org/
The 25% M.E. group
The 25% M.E. Group exists to support all who have the severe
form of M.E. and those who care for them. This includes people who are
housebound, bedbound and wheelchair users.
www.btinternet.com/~severeme.group/
Video clip - How M.E. affects us
An excellent local news feature from Meridan TV about severe
M.E. and how it affects the lives of sufferers and carers. Takes about 15
minutes to watch.
www.investinme.org/Mediatelevision.htm
Immune Support
World's Largest Fibromyalgia and Chronic Fatigue Syndrome
Site - with international news, plus message boards and chat rooms.
http://www.immunesupport.com/
Co-Cure
The name "Co-Cure" stands for "Co-operate and Communicate for
a Cure."
The mailing list has been established with the goal of furthering
co-operative efforts towards finding the cure for the illness(es) commonly
referred to as Chronic Fatigue Syndrome (CFS) and Fibromyalgia (FM)
http://www.co-cure.org/
Chrome
CHROME (Case History Research on Myalgic Encephalomyelitis)
is a registered charity set up in 1994 to identify as many severely disabled ME
sufferers as possible in the UK and to monitor the course of their illness over
a period of ten years, and to analyse the data.
http://dialspace.dial.pipex.com/prod/dialspace/town/way/glc04/chrome/
DLA and IB guides
Guides for applying for Disability Living Allowance and
Incapacity Benefit
http://www.bhas.org.uk/freeguides/index.shtml
Benefits and work guides
Useful website with excellent guides for claiming benefits -
membership charge to download guides
http://www.benefitsandwork.co.uk/
The Solicitors Room
Online solicitors and disability advice run in association
with the Disability Alliance. Gives access to solicitors specialising in various
general areas of law and to benefit advisers from the Disability Alliance. The
advice is stored in the client's own secure legal advice file and remains
available at all times.
https://www.thesolicitorsroom.com/
Foggy Friends
Excellent message boards for people with M.E. covering lots
of topics
http://www.foggyfriends.org/
M.E. Parents
A community for parents, parents-to-be and people considering
parenthood who suffer from ME/CFS.
http://www.mecfsparents.org.uk/
Life Coach School International
Excellent website.
http://www.lifecoachschoolinternational.co.uk/
